Adult Cystic Fibrosis Clinic

Location

8B Providence Building, St. Paul’s Hospital   

If you need help locating us, please ask one of our hospital volunteers to direct you.

About this clinic

We are an interdisciplinary team of health professionals, and are proud to offer patient- and family-centred care to patients living with cystic fibrosis (CF).

The St. Paul’s Hospital Adult Cystic Fibrosis Program is committed to improving the quality of life and health outcomes of individuals living with CF.

We are involved in clinical studies that:

• Improve our understanding of CF lung disease and other CF-related complications
• Evaluate new investigational CF drugs
• Improve the quality of CF care delivery

By participating in research studies offered through our clinic, you are making a valuable contribution to advancing the care of CF patients. Participation in research is completely voluntary and the clinical care you receive is not affected by your decision.

CF CanACT

The Cystic Fibrosis Canada Accelerating Clinical Trials (CF CanACT) is a Canadian clinical trials network established by CF Canada. The aim is to bring new therapies and better care to Canadians with CF through participation in clinical trials. We believe that creating a positive, engaging research environment for those with CF increases participation. This will then help with facilitation and the development of new treatments for CF.

The CF CanACT network consists of CF sites across Canada and St. Paul’s Hospital is one of them. We believe in collaborative work across sites to achieve recruitment goals. We are developing a process that allows anyone with CF living in Canada to be referred to a CF CanACT site to participate in a clinical trial. Once you meet the research criteria, you can take part.

For more information on CF CanACT and a list of CF-related trials conducted in Canada, please refer to the CF Canada website.

Information for health care providers who have patients living with cystic fibrosis (CF) can be found here.

Individuals are welcome to donate to any aspect of cystic fibrosis care or research. You can speak to a staff member at the clinic directly through the main clinic office at 604-806-8522 if you would like to discuss making a donation.

Donations can also be made to The Adult Cystic Fibrosis Clinic Equipment and Patient Enhancement Fund. This fund is used to enhance the direct care of cystic fibrosis patients at St. Paul’s Hospital both physically and psychosocially. These donations are not directed to individual patients but are used to benefit all patients, such as the purchase of specialized equipment for in-hospital patient care. Donations can be made directly through St. Paul’s Hospital Foundation for fund #01866164, or through staff at the clinic.